Which intervention should a nurse perform during the grieving period when caring for a dying client?

Nurses are firmly positioned at the front lines of the healthcare industry, providing skilled care, compassion and comfort for patients and families. In honor of National Nurses Week (May 6 through 12), we take a moment to recognize the important roles nurses play in end of life care. If you have a loved one currently in hospice, you know how critical nurses can be to the whole process. They are the communicators, the liaisons, the connections you have between your family and the hospice care team in Santa Clara.

Inhaltsverzeichnis Show

Roles Nurses Play
Duties of a Hospice Nurse
Contact Pathways Home Health and Hospice
Outcome Identification
Planning and Implementing Interventions
Coping Enhancement
Anticipatory Grieving Interventions
Grief Work Facilitation
Community Resources

National Nurses Week takes place every year on Florence Nightingale’s birthday, featuring many events across the country to honor nurses for the in-the-trenches work they do each and every day to ensure patients and their families are informed and comfortable. All nurses are special, but it takes an extra special person to be a hospice nurse. It’s a grueling, oftentimes sad and many times enlightening job that positions nurses as end of life caregivers for many with terminal disease or old age.

Roles Nurses Play

Within the hospice care setting, the looming reality of a patient’s death can be extremely hard for both patients and family members to accept. This is the time when many difficult decisions must be made regarding treatments that will benefit the patient in their last weeks or months, often bringing quality of life concerns into play. Nurses step in at this time to provide guidance for patients and families confronting those tough decisions and helping them adapt to painful realities, says the American Nurses Association.

Nurses are often times a sole source of support at this delicate time. Families are often confused, scared and overwhelmed at this juncture. They are receiving the facts from doctors about medications, treatments and timelines, but often look to nurses to lean on for emotional support once the doctor has left the room. Therefore, nurses are there to help the patient and family as they struggle to adjust to the reality they’re facing. The nurse’s primary responsibility is to the patient and making sure their wishes are honored. These wishes aren’t always in accordance with the family’s wishes. That’s where the role of hospice nurse gets tricky. They must maintain a focus on the patient’s preferences and respecting their autonomy while at the same time supporting the family as they navigate a process they’ve likely never been through before.

Nurses must be skilled in pain management to ensure their patients remain as comfortable as possible. In addition to disease management, they must also attend to the psychological, interpersonal and spiritual needs of the patient as well. No other professional within the hospice care setting wears quite so many hats as the hospice nurse!

Duties of a Hospice Nurse

Hospice nurses focus solely on end-of-life care, providing hands-on nursing care around the clock — either in a facility or in the patient’s home. Not only do they manage pain and other symptoms, they assist in the process of death with dignity, points out the Houston Chronicle. Because each patient and family both have a unique perspective concerning end-of-life needs, it becomes the job of the hospice nurse to make cultural assessments and adjust care accordingly.

Hospice nurses do many things during the course of a day, such as:

Provide respite care for family members who need a break.
Order appropriate medical supplies needed by the patient.
Perform patient assessments.
Create a plan of care for all caregivers to follow.
Provide sensitive care and emotional support.
Provide crisis care that alleviates symptoms to result in comfort maintenance.
Act as mediator between the family and patient, and the rest of the hospice care team.
Arrange spiritual support services from chaplains, ministers and priests.
Prescribe medications or treatments, and supervise or manage medical care — in the case of nurse practitioners.
Be an advocate for patients.

The duties of a hospice nurse that you don’t see in brochures or in lists of services on websites is the other side of care, the softer side. The side that involves sometimes simply doing nothing at all. When all other tasks are done — blood pressure taken, sponge bath given, meds administered — nurses often sit by their patients’ side, hold their hand, rub their arms, look them in the eye, share stories about growing up, and generally just be there for them. That’s the side of hospice nurses that makes them special.

The dying process is often long and bewildering, lonely and painful, often times undignified, and fraught with the unknown. Hospice nurses jump into the fray to provide that meaningful connection and ease the transition from life to death.

Contact Pathways Home Health and Hospice

If you have questions about our services or what hospice care is, visit our FAQs page. To contact us here at Pathways Home Health and Hospice, call 888-755-7855. Meanwhile, browse our many hospice resources and articles to learn more about what hospice is and how we ease this transition.

Open Resources for Nursing (Open RN)

Grieving a loss is a normal process that has implications for both patient and family well-being. NANDA formally recognizes the dimensions of grief with the nursing diagnoses of Grieving and Complicated Grieving. Recall that grief can be experienced due to many types of loss, in addition to death. For example, when patients receive a diagnosis of breast cancer, they may demonstrate signs of various stages of grief, such as denial, anger, bargaining, depression, and acceptance. When undergoing mastectomy and chemotherapy, the patient may grieve over the loss of prior body image.

Communities can also experience grief. For example, when a town experiences a significant tragedy, such as a devastating flood or a tornado, there can be widespread community grief as families grieve the loss of life, property, or a previous way of life. In these situations, nurses are cognizant of the multiple factors that may impact an individual’s health and grieving process. Identifying these factors can help ensure that appropriate resources are mobilized to facilitate coping and progression through the grief process.

Assessment

Grief assessment includes the patient, family members, and significant others. It begins when a patient is diagnosed with an acute, chronic, or terminal illness and/or when the patient is admitted to a hospital, nursing facility, or assisted living facility. It continues throughout the course of a terminal illness for the patient, family members, and significant others and then continues through the bereavement period for the survivors. During the bereavement period, the nurse monitors for symptoms of complicated grief.

Grief can be manifested by physical, emotional, and cognitive symptoms. Physical symptoms can occur, such as feeling ill, headaches, tremors, muscle aches, exhaustion, insomnia, loss of appetite, or weight loss or gain. Cognitive symptoms may occur, such as lack of concentration, confusion, and hallucinations. Emotional symptoms, such as anxiety, guilt, anger, fear, sadness, helplessness, or feelings of relief may occur. These symptoms of grief and loss can be manifested in many different ways and can vary from day to day. Manifestations of grief are unique to the individual and may be influenced by one’s age, culture, resources, and previous experiences with loss. Additionally, as patients cope with grief and loss, it is important for the nurse to recognize that support is often needed by their family members.

Any behavior that may endanger the patient or family should be reported to the health care provider, such as symptoms of depression, suicidal ideation, or symptoms lasting greater than six months.

Diagnoses

Consult a nursing care planning resource when selecting nursing diagnoses for patients and their family members experiencing grief. See Table 17.3 for definitions and selected defining characteristics of the NANDA-I diagnoses Grieving and Complicated Grieving while also keeping in mind the previous discussion in this chapter regarding stages and tasks of normal grief.

Table 17.3 NANDA-I Nursing Diagnoses Related to Grieving

NANDA-I Diagnosis

Definition

Selected Defining Characteristics

Grieving

A normal, complex process that includes emotional, physical, spiritual, social, and intellectual responses and behaviors by which individuals, families, and communities incorporate an actual, anticipated, or perceived loss into their daily lives.

Alteration in activity level
Alteration in sleep pattern
Alteration in dream pattern
Blaming
Despair
Detachment
Disorganization
Finding meaning in a loss
Guilt about feeling relieved
Maintaining a connection to the deceased

Complicated Grieving

A disorder that occurs after the death of a significant other, in which the experience of distress accompanying bereavement fails to follow normative expectations and manifests in functional impairment.

Anger
Anxiety
Avoidance of grieving
Decrease in functioning in life roles
Depression
Disbelief
Feeling detached from others
Feeling of emptiness
Feeling of shock
Low levels of intimacy
Mistrust
Preoccupation with thoughts about deceased person
Self-blame
Traumatic distress

Examples

See the following for examples of PES statements related to Grieving and Complicated Grieving:

A patient diagnosed with metastatic cancer is advised they have less than six months to live. They begin to move through the stages of grief as they assimilate this information. A sample NANDA-I diagnosis in current PES format is: “Grieving related to anticipatory loss as evidenced by detachment, disorganization, and alteration in activity level.” The nurse would plan and implement interventions to enhance coping for this patient.
A patient’s husband died two years ago, and she continues to be preoccupied with thoughts about her husband. Her grown children live several hours away, and she becomes isolated and unable to complete daily activities, such as cleaning the house and grocery shopping. A sample PES statement is: “Complicated Grieving related to insufficient social support as evidenced by avoidance of decreased functioning and preoccupation with thoughts about her deceased husband.” The nurse would plan interventions to facilitate grief work while also arranging for assistance with ADLs and IADLs in the patient’s home.

Outcome Identification

Goal setting and outcome identification for patients and family members experiencing grief are customized to the specific situation and focus on grief resolution. Grief resolution is evidenced by the following indicators:

Resolves feelings about the loss
Verbalizes reality and acceptance of loss
Maintains living environment
Seeks social support

For the nursing diagnosis of Grieving and Complicated Grieving, a sample goal is, “The patient will experience grief resolution.”

A sample SMART outcome is, “The patient will discuss the meaning of the loss to their life in the next 2 weeks.”

Planning and Implementing Interventions

Nurses are in the ideal position to assist patients with identifying and expressing their feelings related to loss. The most important intervention that nurses can provide is active listening and offering a supportive presence. Actively listening to the bereaved helps them express their feelings and relate the emotions and feelings related to the loss. Interventions to facilitate grief resolution focus on coping enhancement, anticipatory grieving interventions, and grief work facilitation.

Coping Enhancement

Interventions to enhance coping can be implemented for patients and families experiencing any type of actual, anticipated, or perceived loss. Sample interventions include the following:

Assist the patient in identifying short- and long-term goals.
Assist the patient in examining available resources to meet the goals.
Assist the patient in breaking down complex steps into small, manageable steps.
Encourage relationships with others who have common interests and goals.
Assist the patient to solve problems in a constructive manner.
Appraise the effect of a patient’s life situation on roles and relationships.
Appraise and discuss alternative responses to the situation.
Use a calm, reassuring approach.
Provide an atmosphere of acceptance.
Help the patient identify information they are most interested in obtaining.
Provide factual information regarding medical diagnosis, treatment, and prognosis.
Provide the patient with realistic choices about certain aspects of care.
Encourage an attitude of realistic hope as a way of dealing with hopelessness.
Seek to understand the patient’s perspective of a stressful situation.
Discourage decision-making when the patient is under severe stress.
Acknowledge the patient’s cultural and spiritual background and encourage use of spiritual resources, if desired.
Encourage verbalization of feelings, perceptions, and fears.
Encourage family involvement, as appropriate.
Assist the patient to identify positive strategies to deal with limitations and manage needed lifestyle or role changes.
Instruct the patient on the use of relaxation techniques.

See Figure 17.18 for an image of a nurse enhancing a patient’s ability to cope with their illness through active listening and touch.

Figure 17.18 Coping Enhancement

Anticipatory Grieving Interventions

Anticipatory grieving refers to a grief reaction that occurs in anticipation of an impending loss. Recall that anticipatory grieving can be related to impending death of oneself or a loved one, but it can also occur in anticipation of other losses, such as the loss of a body part due to scheduled surgery or the loss of one’s home due to a move to a long-term care facility. Interventions to facilitate resolution of anticipatory grieving include the following:

Develop a trusting relationship with the patient and family members by using presence and other therapeutic communication techniques.
Keep the patient and family members apprised of the patient’s ongoing condition as much as possible.
Keep the family informed of the patient’s needs for physical care and support in symptom control, and inform them about health care options at the end of life, including palliative care, hospice care, and home care.
Actively listen as the patient grieves for their own death or loss. Normalize the patient’s expressions of grief.
Discuss the patient’s preferred place of death and document their wishes.
Ask family members about having adequate resources to care for themselves and the critically ill family member.
Recognize caregiver role strain in family members providing long-term care at home.
Listen to the family member’s story.
Encourage family members to show their caring feelings and talk with the family members.
Recognize and respect different feelings and wishes from the patient and their family members.
Refer the patient and family members to counselors or chaplains for spiritual care as appropriate.

Grief Work Facilitation

Grief work facilitation assists patients and family members in resolution of a significant loss. Sample interventions include the following:

Identify the loss.
Assist the patient to identify the initial reaction to the loss.
Listen to expressions of grief.
Encourage discussion of previous loss experiences.
Encourage the verbalization of memories of the loss.
Make empathetic statements about grief.
Encourage identification of greatest fears concerning the loss.
Educate about stages and tasks of the grieving process, as appropriate.
Support progression through personal grieving stages.
Assist in identifying personal coping strategies.
Encourage implementation of cultural, religious, and social customs associated with the loss.
Answer children’s questions about the loss and encourage discussion of feelings.
Identify sources of community support.
Reinforce progress made in the grieving process.
Assist in identifying modifications needed in lifestyle.

Community Resources

Bereavement follow-up with families is a component of hospice programs and includes formal activities and events to promote closure and acceptance. Many hospices have nondenominational memorial services to honor patients. Family members and staff are invited to participate, which can be effective at helping individuals find closure. Other formal types of support can include organized support groups to facilitate discussion and coping. Individual, group counseling, or psychotherapy are other methods that can assist the bereaved in coping with their loss. See additional resources for family members in the following box.

Patients and family members experiencing depression or anxiety related to the grieving process may be prescribed antianxiety medications or antidepressants. See the “Central Nervous System” chapter in Open RN Nursing Pharmacology for additional information about these medications.

Evaluation

It is always important to evaluate the effectiveness of interventions implemented. Nurses assess the effectiveness of interventions in helping individuals cope and work through the grief process based on the customized outcome criteria established for their situation.