What is another name for a tethered phr?

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What is another name for a tethered phr?

During the early 2000s, a number of enterprising acute provider organizations and their ambitious, well-intentioned healthcare IT partners offered their patients their own personal health records (PHR) upon discharge. As they made their way out of the hospital, along with discharge instructions, they were given a temporary user name ([email protected]_hospital.com) and password and encouraged to create their PHR as soon as they returned home.

This PHR was tethered to and initially ‘fed’ by the provider organization with the data generated during their patient’s recent hospital stay. The data was scant (a few days’ worth of lab results, allergies, meds, and a pdf copy of discharge instructions) and the PHR was not interoperable with anything else in the community besides the hospital itself, and certainly did not offer an opportunity for the patient or family members to contribute to the information in the health record. It’s not too difficult now to have an appreciation for why this strategy was short-lived.

A PHR tied to a specific care setting that represented a very, very short episodic event in a person’s life held no value as a tool to maintain a health and wellness path for the duration of that person’s life (a life that, ideally includes never having to go to a hospital again!).

As the leader of MatrixCare’s Life Plan Community business (and, by the way, one of those previously mentioned, well-intentioned healthcare IT providers above), I have a newfound appreciation for the tethered PHR.  In the LTPAC world, the need for a single source of truth for our senior residents is as important as ever as they become increasingly more active in managing their health and wellness.  MatrixCare clients can now promote and deploy a PHR for their residents and invited family members, a technology that presents integrated health information in ways not imaginable a short time ago. This allows tremendous interactivity and engagement with health and wellness care plans (imagine an easy-to-follow diabetes care plan from your connected primary care physician that you easily mark your compliance to), focuses on medication adherence (think about a reminder sent to the senior and/or their family member that in 3 days a medication refill is due), allows monitoring of therapeutic progress without the need to enter readings due to linked telehealth devices and wearables (electronic blood glucose device, wireless scale, digital blood pressure monitor), allows for secure messaging with your healthcare team, and more.

This incredible, new-age technology platform is delivered in MatrixCare’s CareCommunity and is changing the way healthcare is delivered for the consumer. Seniors and families can rely on the visibility provided with CareCommunity to engage in the treatment plan and daily tasks to ensure buy-in and compliance, understanding of the patient’s living situation, barriers to accessing care, and support systems in place. Physicians and other care team members can manage their entire populations across provider and care-setting boundaries through a single access point, making it easier to impact and monitor resident care. Family members are kept apprised of the health status and progress for their loved one’s care plan, as well as daily activities and appointments, reinforcing the family’s choice for choosing a community for their loved one that promotes such an innovative tool for use by all the stakeholders involved in a senior’s health.

Life Plan Communities, that offer to their residents the ability to be actively engaged in their own health management, are the most logical consumers for this technology platform.  The health information housed in an LPC’s EHR application provides the most logical “seeding” of health information in the platform and provides a clinical baseline from which outcomes and improvements can be measured going forward. As provider organizations seek new approaches to outcome-based care models and opportunities to attract residents, offering a seamless, fully integrated, interactive, and meaningful platform for personal health information and the PHR is certain to play a big role.

Want to learn more? Let’s connect!

July 26, 2011 11:09 AM Eastern Daylight Time

LONDON--(BUSINESS WIRE)--The market for personal health records provision is highly fragmented with the major applications being provided by Google Health, Microsoft (HealthVault) and subscription based providers such as MedicAlert. Personal health records are increasingly being stored in cloud solution applications, enabling clients to control and access their information remotely.

US Personal Health Records Market 2010 to 2015

http://www.companiesandmarkets.com/Market-Report/u.s.-personal-health-records-market-2010-to-2015-625981.asp?prk=7c4ed5b510c1ffe12b50d9829eddaba2

Cloud-computing solutions are becoming more prevalent for personal health records as users move away from stand-alone applications that run off personal computers with data stored on the hard drive or other flash drives. Another growing trend is the provision of bi-directional communication platforms between patients and providers into EHR product suites.

Web-based personal health records are either tethered or untethered. Untethered personal health records are controlled by the individual who signs up for a web-based service with the individual providing their health information for the PHR vendor. Untethered PHR information can be securely accessed remotely anywhere as long as the user has Internet coverage. A tethered PHR is a subset of data compiled by a provider, health insurer or employer who wishes to promote greater health engagement among employees. For tethered solutions, the user can access and update their data with varying degrees of privacy and control.

The US Personal Health Records Market 2010 to 2015 report provides a detailed analysis and overview of the personal health records market, segmented by product type, technical approaches whilst focusing on the key market trends affecting companies operating in this sector. In addition, the report lists the major technologies being applied and the drivers and restraints impacting on the market. Total revenue forecasts between 2010 and 2015 are also provided.

Report Details:

http://www.companiesandmarkets.com/Market-Report/u.s.-personal-health-records-market-2010-to-2015-625981.asp?prk=7c4ed5b510c1ffe12b50d9829eddaba2

From Clinfowiki

Tethered PHRs that are integrated only with an health care organization’s EHR, but offer benefits to individuals and organizations who participate.

Benefits to individuals

Individuals like having easy access to their clinical data, especially test results, and secure messaging with their collaborating clinicians is also seen as very valuable. Care management activities including medication refill requests and making visit appointments may add convenience for users. Caregiver access to children’s or other dependent’s information and provider team is likewise seen as valuable.

Although the tethered PHR has been called a dead end, perpetuating the siloing of patient medical and health data, it is at least useful to help individuals and their health care providers gain experience in sharing information and decision making. These enhanced patient portals help shift the locus of control toward the informed, engaged individuals trying to manage their health in the context of their life and values.

Benefits to organization

This model of interaction helps providers gain experience and skill in working with individuals and their families in a more collaborative, longitudinal way, rather than the episodic, visit based model that is currently the norm. Most health care organizations include Quality and Patient Centered care as part of their mission statement and this can be a step along the path.

Since current tethered PHRs have been shown to be big patient satisfiers their use may give the organization a competitive advantage. Doctors who have changed organizations have lost some patients who have said essentially, “I like you Doc, but I like my MyChart more.” This kind of comment points out both the value patients place on the PHR as well as one of the drawbacks of a PHR tethered to one organization’s EHR.

Portability is an issue as proprietary vendor based PHRs are no more interoperable than their underlying EHRs. But EHR vendors can certainly design them to meet PHR interoperability standards once they are developed. Organizations experienced in working with vendors may be able to leverage that relationship to gain prompt access to the benefits of the truly integrated PHR once it becomes more of a reality than an ideal.

Are the benefits to the organization enough to offset the initial and ongoing costs of implementing and maintaining a tethered PHR? Should individuals be willing to pay, either singly or collectively through government or insurer programs, for the benefits these PHRs offer?

The PHR research agenda is long and broad, but currently, like most health and medical decisions, these must be made with partial information. The wisdom of these choices will only be apparent with the passage of time.

References

  1. Detmer, D., Bloomrosen, M., Raymond, B., & Tang, P. (2008). Integrated personal health records: Transformative tools for consumer-centric care. BMC Medical Informatics & Decision Making, 8, 45.
  2. Frost, J., & Massagli, M. (2009). PatientsLikeMe the case for a data-centered patient community and how ALS patients use the community to inform treatment decisions and manage pulmonary health. Chronic Respiratory Disease, 6(4), 225-229.
  3. Halamka, J. D., Mandl, K. D., & Tang, P. C. (2008). Early experiences with personal health records. Journal of the American Medical Informatics Association, 15(1), 1-7.
  4. Steinbrook, R. (2008). Personally controlled online health data the next big thing in medical care? N Engl J Med, 358(16), 1653-6.
  5. Tang, P. C., Ash, J. S., Bates, D. W., Overhage, J. M., & Sands, D. Z. (2006). Personal health records: Definition, benefits, and strategies for overcoming barriers to adoption. J Am Med Inform Assoc, 13(2), 121-6.

Submitted by Michael Hunter